Portal LIS – Localizador de Informação em Saúde

http://rarediseases.info.nih.gov/

It presents the office and provides information on rare diseases, their diagnosis, treatments and prevention, including clinical studies and trials. It also brings news, links, publications, reports, scientific conferences and a search service.

Creador(es): United States. National Institutes of Health - NIH. Office of Rare Diseases - ORD

Recursos añadido en: 30/10/2008

Objetivo: To answer questions about rare diseases and the activities of the Office of Rare Diseases for patients, their families, healthcare providers, researchers, educators, students, and anyone with concern for and interest in rare diseases.

Idiomas disponibles: Inglés

Enfermedades Raras/diagnóstico, Enfermedades Raras/terapia, Medicamentos del Componente Especializado de los Servicios Farmacéuticos, Ensayos Clínicos como Asunto