Portal LIS – Localizador de Informação em Saúde

http://rarediseases.info.nih.gov/

It presents the office and provides information on rare diseases, their diagnosis, treatments and prevention, including clinical studies and trials. It also brings news, links, publications, reports, scientific conferences and a search service.

Originator(s): United States. National Institutes of Health - NIH. Office of Rare Diseases - ORD

Resource added in: 30/10/2008

Objective: To answer questions about rare diseases and the activities of the Office of Rare Diseases for patients, their families, healthcare providers, researchers, educators, students, and anyone with concern for and interest in rare diseases.

Available languages: English

Rare Diseases/diagnosis, Rare Diseases/therapy, Drugs from the Specialized Component of Pharmaceutical Care, Clinical Trials as Topic