https://www.cancer.gov/pediatric-adult-rare-tumor/

MyPART is the My Pediatric and Adult Rare Tumor network. It is a group of scientists, patients, family members, advocates, and healthcare providers who want to help find treatments for rare cancers. We are working on childhood, teen, and young adult solid rare tumors that have no cures. We think that working as a team will help us find treatments for rare cancers faster. Everyone can play a part.