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http://www.rarediseases.org/

It's a non-profit, voluntary health agency that exists to serve rare-disease patients and their families. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service. Most of the money donated to NORD goes directly to programs and services.

Originator(s): NORD

Resource added in: 30/10/2002

Objective: The NORD is a unique federation of voluntary health organizations dedicated to helping people with rare \"orphan\" diseases and assisting the organizations that serve them.

Available languages: English

Health Systems Agencies, Centers for Disease Control and Prevention, U.S., Primary Prevention, Social Support, Neuroma, Acoustic, Sarcoma, Alveolar Soft Part, Astrocytoma, Neurocutaneous Syndromes, Glioblastoma, Hodgkin Disease, Leukemia, Lymphocytic, Chronic, B-Cell, Leukemia, Myelogenous, Chronic, BCR-ABL Positive, Leukemia, Hairy Cell, Meningioma, Multiple Myeloma, Paget Disease, Extramammary, Paget's Disease, Mammary, Pheochromocytoma, Retinoblastoma, Sarcoma, Ewing, Wilms Tumor, Odontogenic Tumors, Barrett Esophagus, Bowen's Disease, Castleman Disease, Carcinoma, Renal Cell, Carcinoma, Squamous Cell, Neurocutaneous Syndromes, Gardner Syndrome, Lymphomatoid Granulomatosis, Lymphoma, Non-Hodgkin, Medulloblastoma, Melanoma, Meningioma, Peutz-Jeghers Syndrome, WAGR Syndrome, Waldenstrom Macroglobulinemia, Lymphoproliferative Disorders, Zollinger-Ellison Syndrome, Carcinoma quístico adenoideo, Neoplasmas cerebrales, Carcinoma de células de los islotes, Neoplasmas de la lengua, Hiperplasia surarrenal congénita, Neoplasmas del colon, Neoplasmas de la próstata, Neoplasmas cutáneos, Sindrome cardinoide maligno, Linfoma de célula T cutáneo, Linfoma de células manto, Sindrome de nevo basocelular, Enfermedad de Hippel-Lindau

Portal LIS – Localizador de Informação em Saúde

National Organization for Rare Disorders (NORD)

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