Orphanet Journal of Rare Diseases
The official journal of Orphanet, the portal for rare diseases and orphan drugs.
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The official journal of Orphanet, the portal for rare diseases and orphan drugs.
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EURORDIS is a non-governmental patient-driven alliance of patient organisations representing 860 rare disease patient organisations in 70 countries.
We are the voice of 30 million people affected by r...
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Busca reunir pesquisadores e outros especialistas em todo o mundo para propor estratégias concretas, ações inovadoras ou soluções que contribuam para a resiliência do sistema de saúde ao clima ...
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Medical information provided on this site has been prepared by medical professionals and reviewed by the Celiac Disease Foundation’s Medical Advisory Board for accuracy. Information contained on thi...
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Website dedicated to transform the lives of people living with muscular dystrophy, ALS and related neuromuscular diseases.
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The mission of the SMA Foundation is to accelerate the development of a treatment for Spinal Muscular Atrophy. SMA is the leading genetic cause of death in young children.
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SMA (spinal muscular atrophy) is a disease that robs people of physical strength by affecting the motor nerve cells in the spinal cord, taking away the ability to walk, eat, or breathe. It is the numb...
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Este documento tem o objetivo de instituir o Protocolo Clínico e Diretrizes Terapêuticas para Profilaxia Pré-Exposição (PrEP) de risco à infecção pelo HIV.
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Com a chegada de um bebê na família tudo é uma novidade, principalmente quando se nasce os dentes.
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Normalmente se manifesta em crianças com até um ano de idade, quando começam a ingerir alimentos que contenham glúten ou seus derivados. A demora no diagnóstico leva a deficiências no desenvolvi...
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